Ataxia Ireland Latest News

Jul
02

Ataxia Ireland Holiday 2016 - Donamon »

The Ataxia Ireland holiday 2016 takes place from Saturday 2nd July to FRIDAY 8th July and the venue is Cúisle in Donamon, Co. Roscommon. The centre at Donamon is ideal and very suitable for...[read more]

Jun
11

Ataxia Ireland Social »

Attendance Form Saturday, 11th June, 2.00-7.00 p.m. The Talbot Hotel Stillorgan, will play host to the evening. A three course meal followed by tea/coffee will be served and there will also be musical...[read more]

Jun
06

Women’s Mini Marathon »

GIRLS & LADIES! Please register for this year’s Women’s Mini Marathon at vhiwomensminimarathon.ie (Closing Date is 29th April) and participate on behalf of ATAXIA IRELAND Please...[read more]

May
24

The company Horizon Pharma has bought the right for Interferon Gamma in Europe »

Horizon Pharma is running a phase-III trial in USA using Interferon gamma and completed the recruitment of 90 patients with Friedreich's ataxia early this month. They have now announced the agreement...[read more]

May
20

ACCESSIBLE SPANISH HOLIDAY »

Details provided by Kiara Lynch Member and ‘blogger’ Kiara, has kindly sent us the following links to a holiday destination in Andalucia from which she has just returned and found, as...[read more]

Apr
13

Annual Ataxia Conference 2016 »

Research’s Elite Gather Over the course of 3 days, junior and senior scientists gave presentations on the progress of their research. They talked about the different genes that are important...[read more]

Mar
02

Rare Disease Day 2016 »

Dublin Castle played host to the annual Rare Disease day conference on February 29th. Patient groups, members & health reformers gathered to discuss how best to implement the National plan; a detailed...[read more]

Dec
12

ATAXIA IRELAND AGM »

At our recent AGM, the following proposal was accepted: ‘That Ataxia Ireland become ‘Ataxia Ireland Company Limited by Guarantee’ to comply with new Revenue Commissioner and Charities...[read more]

Recent Members Articles

'LIGHT' by Clodagh Clerkin - International Ataxia Research Conference »

The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015.   ++++++++++++++++++++++++++++++++++++++ The...[read more]

Kiara Lynch's Blog »

A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]

View All Members Articles »

Monthly Lottery sign up button

Gift Vouchers Valid for entry into our Monthly Lottery Draw for 6 or 12 months now available. Please see PDF for details and contact the office to purchase.

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