Ataxia Ireland Latest News

Dec
21

Returned Surveys and Bumper Draw »

Due to some confusion between our recent Members’ Survey and the previously-issued questionnaire from the Ataxia Clinic, approximately half of the surveys returned had no names on them (at top...[read more]

Dec
21

Week 1 of Active with Ataxia »

A new fitness programme designed by physical trainer Alan Dunne who has many years experience of working with people with disabilities. The programme focuses on improving core strength and building...[read more]

Dec
15

First 23 European Reference Networks for Rare Diseases »

On 15 December  the European Commission announced  the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...[read more]

Dec
09

ATAXIA IRELAND COUNTRY CHRISTMAS LUNCH IN CORK »

Some 30 people gathered in the Oriel House Hotel in Ballincollig, Co Cork, for our first Christmas Lunch outside Dublin and in, what those attending called ‘The Real Capital’!  A delicious...[read more]

Dec
08

Interferon Gamma study on Friedreich’s Ataxia in the US »

Interferon Gamma study on Friedreich’s Ataxia in the US, did not meet it's requirements in a recent phase III study; Horizon Pharma have recently announced. This may mean research will have...[read more]

Dec
07

Ataxia Ireland Awareness Video »

We have recently launched a new Awareness Video with the help of two of our members; Emily Felix and Ronan Clarke. The video shows the challenges of living with ataxia. However with the right support...[read more]

Dec
03

ATAXIA IRELAND CLG CHRISTMAS LUNCH AND SOCIAL »

Members and friends had a convivial and busy afternoon at The Talbot Hotel.  A full Christmas Dinner was served, followed by Santa’s visit, the inaugural screening of our Ataxia Awareness Video...[read more]

Oct
21

INAUGURAL GALA BALL »

This event has been postponed until 2017 – we hope you will join us when the new date has been confirmed. ...[read more]

Recent Members Articles

'LIGHT' by Clodagh Clerkin - International Ataxia Research Conference »

The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015.   ++++++++++++++++++++++++++++++++++++++ The...[read more]

Kiara Lynch's Blog »

A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]

View All Members Articles »

Ataxia Ireland is a company limited by guarantee, with registered offices at 4 Leopardstown Business Centre, Ballyogan Avenue, Dublin 18, registered in Dublin number 566322.

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Gift Vouchers Valid for entry into our Monthly Lottery Draw for 6 or 12 months now available. Please see PDF for details and contact the office to purchase.

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