Ataxia Ireland Latest News
5th June 2017 The Vhi Women’s Mini Marathon in Dublin is the biggest event of its kind in the world. Every year since its inception in 1983 this event has seen its numbers rise with thousands...[read more]
The launch on Thursday, 20th April was a great success with some 20 people, including members and friends, meeting up for ‘a cuppa, a cake and some chat’ at the Ataxia Ireland offices, with...[read more]
Congratulations to our Survey Draw Winners! 1st Prize Cyril Gerety €2000 and 2nd Prize Damien McDonagh €1000 Thank you to Niall Barry, Executive Director of Team Hope who drew the winning...[read more]
On 15 December the European Commission announced the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...[read more]
Some 30 people gathered in the Oriel House Hotel in Ballincollig, Co Cork, for our first Christmas Lunch outside Dublin and in, what those attending called ‘The Real Capital’! A delicious...[read more]
Interferon Gamma study on Friedreich’s Ataxia in the US, did not meet it's requirements in a recent phase III study; Horizon Pharma have recently announced. This may mean research will have...[read more]
We have recently launched a new Awareness Video with the help of two of our members; Emily Felix and Ronan Clarke. The video shows the challenges of living with ataxia. However with the right support...[read more]
Recent Members Articles
The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015. ++++++++++++++++++++++++++++++++++++++ The...[read more]
A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]
Ataxia Ireland is a company limited by guarantee, with registered offices at 4 Leopardstown Business Centre, Ballyogan Avenue, Dublin 18, registered in Dublin number 566322.
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People living with an Ataxia benefit enormously from the many services provided by Ataxia Ireland.
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