Registration for Rare Disease Day 2017 is now open
Ataxia Ireland Latest News
5th June 2017 The Vhi Women’s Mini Marathon in Dublin is the biggest event of its kind in the world. Every year since its inception in 1983 this event has seen its numbers rise with thousands...[read more]
Week 3 and member Graham Russell together with trainer Alan Dunne, demonstrate the use of resistance bands to help core strength. Week 3 Active with Ataxia from ataxia ireland on Vimeo...[read more]
This week, another of our members, Nuala Staunton demonstrates the exercises together with physical trainer Alan Dunne. Please only partake in exercises following your doctor's advice. Active...[read more]
Due to some confusion between our recent Members’ Survey and the previously-issued questionnaire from the Ataxia Clinic, approximately half of the surveys returned had no names on them (at top...[read more]
A new fitness programme designed by physical trainer Alan Dunne who has many years experience of working with people with disabilities. The programme focuses on improving core strength and building...[read more]
On 15 December the European Commission announced the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between...[read more]
Some 30 people gathered in the Oriel House Hotel in Ballincollig, Co Cork, for our first Christmas Lunch outside Dublin and in, what those attending called ‘The Real Capital’! A delicious...[read more]
Interferon Gamma study on Friedreich’s Ataxia in the US, did not meet it's requirements in a recent phase III study; Horizon Pharma have recently announced. This may mean research will have...[read more]
Recent Members Articles
The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015. ++++++++++++++++++++++++++++++++++++++ The...[read more]
A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]
Ataxia Ireland is a company limited by guarantee, with registered offices at 4 Leopardstown Business Centre, Ballyogan Avenue, Dublin 18, registered in Dublin number 566322.
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Gift Vouchers Valid for entry into our Monthly Lottery Draw for 6 or 12 months now available. Please see PDF for details and contact the office to purchase.