REMINDER - Living with Ataxia Survey
If you have not already done so (and we have no way of knowing, as the Questionnaire is Confidential; we merely pass them on to the Ataxia Clinic), please return your completed Questionnaire as soon as possible to the office below or complete online through the following link:- https://www.surveymonkey.com/r/FGP9D89 All members are encouraged to take part in this important research and we thank all those who have already responded.
Barbara Flynn - CEO
Ataxia Ireland Latest News
An excellent week was had by all in mixed weather which, however, didn’t interfere with any of the planned activities. As well as the annual staples such as Fishing, Shopping (which was ...[read more]
We are launching this survey with the National Ataxia Clinic in Tallaght Hospital. The aim of the survey is to establish the impact of having ataxia on quality of life and also the costs of the condition...[read more]
At last Saturday’s Social, a presentation was given by Clodagh Clerkin, Information Officer, on cutting edge research currently underway and Dr Petya Bogdanova, Registrar at the Ataxia Clinic,...[read more]
Ataxia Ireland has changed its logo. The new logo is a depiction of a DNA strand. This helps to illustrate the basis of ataxia but it also shows people with the condition are more than their disability....[read more]
A big ‘thank you’ to all those of you took part on behalf of Ataxia Ireland. We hope you enjoyed the experience and were able to spread awareness about our charity. ...[read more]
Horizon Pharma is running a phase-III trial in USA using Interferon gamma and completed the recruitment of 90 patients with Friedreich's ataxia early this month. They have now announced the agreement...[read more]
Details provided by Kiara Lynch Member and ‘blogger’ Kiara, has kindly sent us the following links to a holiday destination in Andalucia from which she has just returned and found, as...[read more]
Recent Members Articles
The following poem was written and delivered by one of our members, Clodagh Clerkin, at the end of the International Ataxia Research Conference held in the UK - March 2015. ++++++++++++++++++++++++++++++++++++++ The...[read more]
A Blog by one of our members, Kiara Lynch https://friedreichsataxiajourney.wordpress.com/ ...[read more]
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Gift Vouchers Valid for entry into our Monthly Lottery Draw for 6 or 12 months now available. Please see PDF for details and contact the office to purchase.